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The purpose is to make sure that every child death is reviewed by a team of local professionals to explore events in more detail and to discuss the care provided to the child and their family. The NHS Greater Glasgow & Clyde CDR team will help coordinate and advise on the process.
The CDR share common features with existing reviews and the CDR team will liaise with them to get a document completed at the end of their process. Existing reviews only review patients who meet their own specific criteria. The CDR is a new review process that will also review deaths that are not routinely reviewed by existing reviews.
The NHSGGC CDR Team consists of consultant clinical leads for Neonates, SUDI, Child Death (0-16 years) and young person’s (16-26years) and our Administration Team
A child or young person known to you or your service has recently died. There is to be a review of the child or young person’s death and you have been invited to join this to contribute to the discussions
Participating in a Review can be highly stressful and it is understandable if you feel unsettled or anxious. If you are worried, then please contact the CDR team on firstname.lastname@example.org whom will put you in touch with one of our Clinical Leads or Co-ordinators to talk to you about any concerns that you may have and guide you on what to expect.
You are welcome to invite your line manager or clinical supervisor. Please let the CDR team know on email@example.com.
Some families and carers might see the Child Death Review as a means of answering their questions and addressing their complaints. These should be made through the usual channels and not wait for the outcome of the review. We will be working with grieving families and carers to address this.
The CDR Questionnaire has been designed to obtain information that is required by the Scottish Government and also inform the review. All professionals involved in the child’s care will be asked to complete this in advance of the CDR Review meeting
The CDR Questionnaire has an option to select ‘0 – information not available’ as a response. The CDR team has made sure to include staff from a wide range of relevant departments to the review so it may well be that they could provide information to the questions that you are unable to answer.
At the moment, and for the foreseeable future, all the reviews are being held online using Microsoft Teams. You will be sent a link so you can join the review.
Take some time to read through your records of your contact with the child / young person. It can sometimes be months between when the child or young person has died and the review so you may need to refresh your memory.
No this isn’t a requirement. You will be invited to tell the review group about your role with the child /young person who died and participate in the discussion. Some people find that it helps to have some notes to refer to during the review.
The Scottish Government through the commissioning of the National Hub for reviewing and learning from the deaths of children and young people (co-hosted by Healthcare Improvement Scotland and the Care Inspectorate) require us to standardise the way in which we review, record and report all children within NHSGGC aged 0 – 18 (or up to aged 26 if in receipt of ongoing care or aftercare in local authority care) who have died. This information will feed into the national child mortality database owned by the National Hub.
The outcome of all information is expected to be the identification of modifiable or preventable factors in the deaths of children. This work will be undertaken in collaboration between NHS Boards; Local authorities (including HSCP), Healthcare Improvement Scotland and the Care Inspectorate.
A team has been established within hospital paediatrics consisting of clinical and administration representatives to establish and maintain the service.
This SOP suggests a process for managing reviews.
Last reviewed: 01 December 2023
Next review: 01 December 2025
Author(s): Lynn Macleod; Amita Sharma; Coral McGowan
Approved By: Child Death Review Team